Sunday, December 29, 2013
Travel adventures
When the holidays rolled around, I discovered Mixbook, a great site that allowed my sisters and me to collaborate on photo books. As much as I love digital photos, and the convenience of pulling out my phone to show off important pictures, I still love making and looking at photo books. Part of me still loves holding a finished product in my hand.
Here is the book I designed for Lauren and Maddie:
The year in pictures
Tuesday, September 17, 2013
Happy birthday, part 2: Nosh on!
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Thumbing through it, I could practically hear him. Sprinkled throughout the recipes were Dad's unique pearls of parental wisdom.
A few examples:
- His cooking instructions for Salmon Dijon Eh!: "Stick in oven. Pour glass of wine and sip while waiting 25 mins."
- Marinade for kebabs: "Mix and mash, simmer for as long as you like. This also removes odors from most bathrooms."
- Louisiana Crab Cakes: "Serve with remoulade sauce or store-bought tartar sauce if you are planning to prepare the spare bedroom."
- Oven-Roasted Lamb Shanks (notes about the red wine in the recipe): "Any red plonque will do, but I prefer port wine ... The raisins plump up into little port pills!"
- On the red wine called for in his Coq Au Vin recipe: "If you are cooking a lot you can use half wine and half chicken stock -- you miserable cheapskate."
- Serving suggestion for his Rubbishy Lemon Chicken recipe (which shares a page with his Classic Lemon Chicken recipe): "Serve with any old rubbish your laziness deserves!"
- Bashed In Chicken (the first step to making stuffed chicken breasts): "Take a meat mallet, baseball bat, chopper blade or rolling pin and pound the hell out of the chicken. I find it easier if you pick a chicken named Hillary."
- In the tapas section: "Give one to each guest and keep the rest for yourself."
I can almost hear him saying Buenos noshes!
Happy birthday, Dad
The new grandstand. |
The final furlong. |
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He would have enjoyed the boat docked across the way, too. |
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The church. |
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I still can't look at this picture without tearing up a bit. |
Site of many midday pints back in the day. Now that Heather is an adult, she found her luck with the fruit machine wasn't quite the same. |
Saturday, August 24, 2013
Fiddy
Mike's friend/former coworker Stacey used a golf game to get him out of the house. Somehow, even though she gave him a 10-minute head start, Stacey arrived at the party before he did. [Insert elderly driver joke here. We did.]
He was greeted by this:
Best. Party favor. Ever. |
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He ditched the head gear as soon as he could. |
Mike joined the band for a few numbers |
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He wasn't the only one enamored with the bongos. Leah was particularly enamored, and the band was really good to her. |
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Some partygoers were exhausted by 11 or so ... |
... And then found a fifth wind and kept going. |
Not in my backyard
Sunday, May 12, 2013
Thud [Cough]
Off I went on Friday, for another endoscopy to gauge my ulcer recovery. The innards looked fine, the anemia numbers are improving, but it turns out I was incubating a case of pneumonia.
So instead of carousing in honor of his birthday, Mike spent Friday at the hospital with me for said endoscopy; Friday night with the kids and the puppy while I tried to sleep off a fever; Saturday chauffeuring kids and canceling the sitter while the fever persisted; and Sunday sending me to the Minute Clinic and cooking a dinner that I ate in bed.
I have no experience with pneumonia, and had to quiz the doctor on duration and symptoms. The longest-lasting one? Fatigue.
I'm fatigued with fatigue.
Even though I am making outstanding progress toward my $5,000 goal, at this rate the June 5K isn't going to happen. However, my word is my bond (I think Elizabeth Dole once said that about Bob when he ran for president), so if your reason for giving was the image of me running, don't despair. I will keep my word on a new timetable, and run in the fall. The added benefit? You can imagine me training in July.
I am behind on my thank-yous, and happily, I have a quite a few to give:
Julie O'Sullivan. My sister. How does she owe me? Let me count the ways ...
Patsy Hamilton. My mother-in-law, and a devoted grandmother. But which half of her made the donation? The mother-in-law half might have ulterior motives.
Andrew and Jamie Dorman. He and I go back to high school. Enough said.
Cheryl Grant and Christine Musselman. Members of the Bunco group I've lost money to on a regular basis. Cheryl is the workout buddy of my neighbor Heather, and probably wants someone else on the business end of Heather's wine-fueled training plans.
Theresa Baxter, Teresa Crofoot, Michelle Rancourt, and Tara Wittig. Neighbors who are either really supportive, need a good laugh, or want to use me as target practice.
Karen Ramey. Fellow Domer. I thought alumni were supposed to stick together?
Christine Lucy. A friend of my sister Julie's from Georgetown. What did Julie tell her?
Seriously, TACA families appreciate your donations. Your help keeps our families moving toward recovery. Our page is still live, until June 30.
Sunday, May 5, 2013
The finish line, finally
Up for discussion were three school programs that will likely keep Leah until she's 21. After that, school won't be the center of her life anymore, and her days will need to be filled with something else. We hope a job will be part of that equation, as well as other activities that will make her happy. Overall, not terribly different from our aspirations for Lauren and Maddie. Certainly this decision felt every bit as significant as the choices we'll help them make as they finish high school.
I've been out of college longer than I care to admit, but I'm not too old to remember what it was like to check out college campuses. I found a few similarities:
Tours. All three schools we visited were happy to show off their facilities. At my alma mater, Notre Dame, the tour highlights included the golden dome, the football stadium, and Touchdown Jesus. I checked out dorm rooms and the student center. For Leah, the classroom highlights were iPads and SmartBoards, and she happily sampled OT gyms and calming areas. The bubble column at Kennedy Krieger was a favorite.
Interviews. Admissions teams want to know all about student strengths and weaknesses. Prospective college students are all about self-promotion. Parents of prospective nonpublic students are all about the weaknesses. It's how we arrive at the application process. Your kid draws bubble guppies all over every other language arts assignment? Tosses Crocs? Flips chairs? Make sure all of it is on the record. While Behavior Intervention Plans (BIPs) are the sole province of the special education school, Notre Dame's Office of Student Affairs probably would have liked one for every student in the school, with provisions like limiting access to beer and the opposite sex.
Life skills. On college campuses, you can usually find professors who seem ill-equipped to function outside the classroom. At least Leah will get some life skills instruction during the week to go along with her academics. Truth be told, Leah is already better with laundry than I was in college. I used to put it off until I'd been through every last pair of underwear. Leah likes to launder every Sunday. (During my years at Notre Dame, the women's dorms came with washing machines. The men's dirty clothes went to St. Michael's Laundry, until it burned down in my junior year. Ha.)
Tuition. Next year, Notre Dame will cost about $57,000 in tuition, room, and board. Nonpublic tuition around here averages more than $65,000. Unbelievably, I found a way to make Notre Dame look like a bargain. The other major difference is that Anne Arundel County Public Schools will be receiving the tuition bills.
The best news is that we found a school we're truly excited about. Leah will start at St. Elizabeth School in Baltimore on May 13. I have no idea what I'm going to do with all the extra mental energy, in the absence of fretting about school. We're definitely ready to return to one IEP meeting per year for awhile.
Onward and upward, we hope.
Saturday, April 13, 2013
More thank yous, and a few hurdles
Thursday, April 11, 2013
Deep gratitude
- My mother, Kathie Cocks. OK, she might owe me a few hours of punishment. If I had announced this before she gave her gift, she might have funded the full amount. Seriously, though, she is an amazing grandmother to Leah, completely supportive of everything, and even willing to do overnight babysitting and give supplements. That may seem like the world's feeblest compliment, but trust me, it isn't. Sadly, I have met autism parents who tell me about grandparents who are unwilling to be left alone with their autistic grandchildren. We know what we have, and we're grateful for it.
- Isaac and Sheila Heimbinder. The Heimbinders lived down the street from us when I was in elementary school. They have been generous to TACA every year since our chapter formed. They saw a few of my attempts to play sports as a kid and if they've read about the 5K plan, they might be thinking, "Yeah, right."
- Chris and Christine Donnelly and John Blasi and Kathy Stohr. Unfailingly supportive every year. We go back to college and late nights at The Observer (longer ago than anyone cares to admit). If they'd known about the 5K, they might have kept their wallets closed. They've seen me stumble around enough already.
- Debbie Wetzel. Debbie runs Partners For Success, which is a great source of information and assistance for parents of kids with all types of disabilities in our county school system. Their lending library is great, convenient, and free. Debbie comes to our meetings when she can and spreads the word about our chapter.
- Eric and Kera Matsui. They moved in down the street last summer and they already fit into our neighborhood like they've been here for years. Their families might want to stage an intervention.
- Mike and Leslie McQuade. See above. Only difference is, they live across the street.
- Cheryl Peeples. An amazing mother warrior. I met her at an Autism One conference several years back. I'm hoping to get back to another one sometime soon, and when I do, I hope she'll be there.
- Steve and Melissa Slatnick. Great neighbors, great supporters of our family. If I'd asked Steve's advice, he probably would have suggested a bike ride instead of a run.
- Ben and Jonnie Dorman. Cherished friends from my family's time living in England. Lauren and Maddie had great fun meeting their grandchildren on our recent trip to California.
Tuesday, April 9, 2013
Autism is definitely not a sprint
Tuesday, April 2, 2013
World Autism Awareness Day
Today, the eyes of the world are supposed to turn toward autism. Autism Speaks actually uses the word 'celebrate' in connection with its Light It Up Blue campaign, which draws participation from notable landmarks like the Great Pyramids of Egypt, the Sydney Opera House, and even Reunion Tower in my former home of Dallas, Texas.
The pictures look pretty, if you like symbolic gestures. The use of the word 'celebrate' in connection with an epidemic disturbs me. We're now at 1 in 88 -- or 1 in 50 schoolchildren, according to a recent study. The kids we're celebrating are going to get awfully expensive once they start aging out of the school system.
Does that mean we don't celebrate our beloved Leah? Quite the opposite. We celebrate who she is in spite of her autism. A couple of weeks ago, she was poked and prodded at a clinic at Kennedy Krieger, told what she could eat and when, and stayed still for blood draws even as the techs muttered things like 'tough stick.' Leah is my hero.
People with autism can be some of the most uniquely gifted individuals around. I will happily celebrate a kid's perfect pitch. I have applauded and been genuinely in awe of a couple of students who, when given a date (past or future), can tell you what day of the week it falls on. I can think of a couple more who will be graduating from sought-after magnet programs in our local school district. I am thrilled to watch them advocate for themselves. People with their gifts are often the ones you'll see representing autism during all of the awareness events.
Their achievements are celebration-worthy, but they only tell a fraction of the story. True autism awareness means looking past the blue buildings and thinking about what life might be like for people across the spectrum. Trust me, we are aware of autism in our house every single day.
We were aware of autism during our California vacation this week, when one of the Phineas and Ferb dance parties at Disneyland did not go off as scheduled. Other park visitors were too. During later shows (we were front and center for all of them), Phineas and Ferb themselves were quite aware, as Leah edged closer and closer to them with every song. Thankfully they -- and the accompanying Fireside Girls -- treated Leah with good humor and compassion. At the end of that day we were aware again, when we had to leave the park rather abruptly, because Leah was done for the day. We know the consequences of pushing her too hard, so we listened when she said she was done, even though we had to 'disappear' without a proper goodbye to some very old, cherished friends.
My sister and her family were aware a couple of times during our visit this week, when Leah woke around 2:00 am and decided it was the right time to play the piano. Sometimes parents don't get much sleep when they're trying to safeguard the rest of others.
Not long after we get back, we'll be in a conference room again for our next round of school system warfare. I'm pretty sure we've raised some awareness among our Facebook friends with our IEP-related status updates. This next round should be the decisive one. The overarching theme: Schools can be spectacularly ill-equipped to work with ASD kids. Districts will make tremendous efforts to avoid admitting that's true, until it becomes painfully obvious to everyone that their efforts are a lot like putting lipstick on a pig. By then, a lot of time has been lost.
Amid all of this awareness, we work hard to have hope. Sometimes it's easy. The contentment on Leah's face as we ride the ferris wheel on Santa Monica Pier and her excitement as her feet touch the Pacific Ocean remind us that she has the same capacity to enjoy her life as the rest of us do. Those are the moments we celebrate. Not Leah's autism, but the moments we see through it to the beautiful soul inside.
If you want to honor families with autism this month -- or any other, because facing autism is definitely a 365-day proposition -- please consider a donation to an organization that helps families. Since 2008, I have been a chapter coordinator for Talk About Curing Autism (whose founder, my friend Lisa Ackerman, also blogged about 'celebrating' autism). I give TACA my time because their resources go where they're needed most -- toward supporting families. Our family's annual fundraising page is online, and includes a written update and a video. Please pay us a virtual visit, and help us honor Leah -- the person, not the diagnosis.
Tuesday, February 5, 2013
BCS = Bloody Charlotte Stores
On the people mover, we passed EA Sports first, with its SEC-centric window and Alabama championship t-shirts on display.
Please, God, let us roll past the Tide. |
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Really? |
Where's a bottle of Patron when you need it?? |
BCS = Big Collegiate Shenanigans
Game day was in fact perfect, until about the second play of the game. Things got painful after that, but even the score of the game itself couldn't wipe out the fun of the pregame activities.
We began the day with an early lunch at Primanti Brothers, which Heather and her ND friends Dan and Nate knew about and loved from visits to Pittsburgh, and I knew about through Maddie's love of Man vs. Food. Primanti Brothers sandwiches combine the meat and the sides (cole slaw and fries) between two hefty slices of bread. First order of business after their arrival at our table? Photography, followed by Facebook posts.
Food wins: I could only finish half. The other half was my post-game comfort food. |
I followed the crowd and posted mine too, because I figured Maddie would appreciate it. As the others surrendered themselves to sandwich bliss, I briefly considered yanking a few chains by making an 'ick' face after my first bite. I changed my mind when I realized I would probably be dumped in the ocean. Primanti Brothers is no joke. It actually was an excellent sandwich.
At the end of lunch, two more of Heather's friends (and fellow ex-Observerites) arrived from Virginia. In itself, not unusual for a team with a national following. But these two left their houses at the end of the Redskins game the night before (about 9 p.m.) and drove straight through. As Heather put it in her blog post for New York magazine, they "still hadn't slept when they cracked their first Yuengling at our tailgate." No, they didn't have tickets. They just wanted to be there. Since they were the only ones with the fortitude to act like they were still in college, they were heroes.
Hail the conquering heroes: The all-night drivers are on the left and right. |
The obligatory I-was-really-there photo. |
(At this point, I like to imagine that to Brian Te'o, 'catfish' was still something you rolled in batter, deep fried, and ate with tartar sauce.)
Te'o-gating. |
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Love it. |
Good thing I did this before we ran into the chick with the bourbon shots. |
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Reunited! |
And then it was time to go into the game. We all know what happened next. I tried to stay on a media blackout for as long as possible, but Deadspin and Manti Te'o made that difficult.
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The Delorean. The Irish Guard is producing the smoke. |
Tuesday, January 8, 2013
BCS = Bizarre Clothing Selections
Anything above the waist in this pic is body paint. There was a similarly painted Alabama dancer nearby. A couple of doors down, a drag queen was leading a bar in shouts of, "We are ND!" Hopefully Father Hesburgh's handlers weren't taking him out for some air on South Beach this afternoon.
In other fashion news, we have seen more skintight gold pants this weekend than I thought existed. On the Alabama side, lots of houndstooth and fedoras to go with all the red, and quite a few diamond-encrusted, cowboy-booted women.
Monday, January 7, 2013
BCS = Bringing Catholics to South Beach
1:00 ish
This town seems ready for us:
I like that Manti looks like he's about to sack McCarron.
Do you think NIU's welcome for the Orange Bowl was this enthusiastic?
2:00 ish
Florida is not considered an intellectual heavyweight state. This is the land of the hanging chad, among other things. Floridians can be quite clever when they apply themselves, though.
Heather and I decided to pay a visit to South Beach, the epicenter of the pre-game festivities. Traffic and parking, while never simple, should probably carry a surgeon general's warning when the area is overrun with ND and Bama fans. After a couple of false starts, and after giving some consideration to a sit-down meal at a swanky restaurant just so we could use their valet, we spotted a small parking garage. We'd driven in before we saw the rates: $40 for up to two hours, $50 for 2-6 hours. Prepaid. Too hard to back out, and truth be told, I think we would have paid twice that to GET OUT OF THE DAMN CAR. And of course we ponied up the extra $10, because we didn't feel like watching the clock. We reminded ourselves that we'd paid $25 each, which we've paid for parking at sporting events, amusement parks, or even city garages. That sounded a lot better. Needless to say, we were determined to stay on South Beach for at least two hours and one minute.
Floridians aren't dumb. They just have different priorities.
Less than two hours, one minute later
It's beginning to feel a lot like the Orange Bowl:
We posed for some pix in the fan experience also. If the ratio of blue and gold to red on South Beach is any indication, I expect ND fans to be in the majority in the stadium.
We also spent some time in a beer tent talking to a random alum from the 60s who showed us pix of his grandson and invited us to his massive tailgater the next time we go out for a game (which, given my track record of returning to campus, could be in fifteen years or so). Every so often, he turned around and called 'borracho!' to a woman behind us who was buying him drinks because she thought he looked like Jack Nicholson. I think borracho pretty much summed it up for him.
Sunday, January 6, 2013
BCS = Best Christmas Surprise
10:30 pm
The elevator at the hotel is slower than my grandfather driving through a Christmas light show. (He REALLY liked to savor the lights.) Before we left for dinner, we let the front desk know our room smelled a bit damp. On our way back in, we were in the elevator with a guy holding Febreze, towels, and a to-do list with our room number on it. He got off on the third floor, dropped the towels off somewhere, and arrived at our fourth floor room, Febreze in hand, at the same time we did. Note to selves: Allow 20 minutes travel time to the breakfast buffet.
9 pm
When I looked over the hotel reservation and started to re-orient myself to Fort Lauderdale, I wondered if the hotel was located near one of our favorite landmarks from our time in South Florida. Every time we took 595 from our place in Plantation into Fort Lauderdale, we could see it from the highway: the mausoleum for the Forest Lawn funeral home. Or, as we reverently called it, The Pyramid of Death. We were not disappointed. It's right across the street.
Hopefully it is not a bad omen for the Irish.
The woman at our hotel check-in brightly inquired whether we are going on a cruise. She looked confused when we told her we're here for the BCS championship game.
8 pm
Lots of BCS signage and welcome goodies at the Fort Lauderdale airport, which appears to have spent much of the last decade under construction, with minimal progress. I rounded a corner into what looked like a mostly-finished shopping area designed to look like a cutesy village and saw this:
5 pm
The crowd at the gate in Charlotte is sporting a lot of ND blue and gold. I feel like I am traveling incognito because I am not wearing anything with Notre Dame on it. I end up seated next to an older couple wearing everything Bama -- the woman has teased hair, red boots, a prairie skirt, red jacket with Bama boutonnière, and an Alabama diamond watch. I resist the urge to play the fight song, helped by the fact that I have to turn off electronics for takeoff.
Morning
I looked at Mike this morning and said, "I'm probably too old to get away with saying, 'I'm going to the 'SHIP, baby,' aren't I?" Even though I already knew the answer, I was still slightly disappointed when he agreed with me.
In my student days, there were plenty of alums to giggle and roll our eyes at on football weekends. Lots of middle-aged men in plaid pants and ND logos who sometimes wanted to visit their old dorms. I wonder whether the alum stereotype has changed since then. Maybe now the students giggle at people like me, who would not be caught dead in plaid pants, but will be carrying around all the same gadgets they have and trying to act like we're still students.